Terribly Poetic

It seems like such a long time since my last update. I feel like so much and yet so little has happened since my last update. Holidays was mostly relaxing as I was able to be at home with the family. However, it was also very exhausting and in some ways continues to be. In an effort to do whatever we can to avoid a feeding tube we have been feeding Norah as often as possible. We continue to wake up and feed her in the night, which is the job I get to do. While the routine has set in and we are somewhat used to it, we still continue to fight the lack of sleep we are getting. But, it is all paying off because Norah doesn’t need a feeding tube, yet. She is finally over 9lbs!! (She was 7lbs 13oz when she was born) Now we are in the waiting game as we wait for her surgery. While there is some paper work we can do like Ronald McDonald House, Kinsmen Telemiracle Funding, etc, etc to keep our minds off the actual surgery itself, in the back of our minds is still this one big thought…. Norah is getting OPEN HEART SURGERY!!!! Please pray for our energy levels, while we are leaning on the peace of God and feel like He is in control, we still have moments and need to continually reminder ourselves that we are not in control. And for that fact we are thankful.

The next step now is to keep doing what we are doing to help Norah gain as much weight as possible before her surgery. Until next time.