Terribly Poetic

Today was the day that we finally moved out of the PICU. It was very refreshing to get away from the PICU as it can be a very stressful place to be. Although we did enjoy our nurses there.

We have moved into the Cardic Care Unit and share a room with another little girl. Norah is doing really well. Our biggest struggle and prayer request is that Norah would learn to feed. We have gone back to feeding through the NG tube as we did before surgery. Thankfully we are comfortable with this and will be able to go home continuing this routine. Norah has lost the suck and swallow ability as we told that this “skill” can be lost rather quickly. Thankfully she still loves her soother, so we will have to meet with a speech path who can help to reteach Norah to swallow. Please pray that she can be a fast learner. While this won’t be a hurdle to us coming home, we would like to learn as much as possible before we leave.

The only difference to being off the PICU; besides not having 1-1 care anymore; is that there is a bed for Dawn to room in with Norah during the night. However, this also means that Daryl has to go back alone to the Ronald McDonald House alone. While not a huge deal, it is difficult to leave. Hopefully our little family can be ALL back together soon.

We got a chance to talk to Libby this morning. She is loving it over at Grandma and Grandpa Klauses. However, we are all missing each other, especially Mom.

Thank you for your prayers. Until next time.