Terribly Poetic

Well after a day of (really) no change, we were excited to see a lot of things move forward today. As I said before Norah got one of her chest tubes removed before lunch. Then in the afternoon she got her breathing tube, her temperature line, and her catheter out. She also is completely off the morphine and other medicines as well. She now is only on Tylenol and still has one more medication to go. It is a medicine that helps to constrict her heart and get the gunk out of her lungs as well. They are weaning her off that tonight and hope to have her off of it tomorrow morning.
Because she became unhooked from a lot of wires/tubes, Daryl and I were able to hold her for the first time!!! It was so wonderful… I can’t even describe what it felt like. It was surreal! It was also wonderful to hear her little cry (even though it still sounds quiet and raspy). By the end of me holding her my arm was completely asleep and tingly, but I totally didn’t care!
We are hoping, and the Dr’s think, that Norah will be able to move up to the cardio ward tomorrow!! YAY! This means that we’ll have more room to be with her and I’ll be able to room in with her as well!
We feel so incredibly blessed by you all! It has been wonderful to receive all your little notes of encouragement. Thank you for thinking of our family.

Last night we met another family that needs your prayer:

Rebecca and Grant have a little girl named Oxsanah (Ox-anna). She is only 2 weeks older than Norah (so she is 4 months old). When Rebecca was about 20 weeks pregnant they discovered that there was something wrong with their babies heart. Oxsanah’s heart only has 3 out of 4 chambers and one of her valves was basically useless. The Dr’s all encouraged Rebecca and Grant to terminate the pregnancy but they refused. So they were told that they would be given compassionate care after Oxsanah was born, which basically meant that after her birth, her parents could hold her while she died. But, by the power of God, Oxsanah is still alive! She has a shunt in her valve and she is doing okay breathing on her own (she just got her tube removed today again…. for the second time in three days). The Dr’s think her only chance for survival is a heart transplant. I can’t imagine what they are going through. Rebecca said it has been a huge comfort to know people are praying for them. When they feel down, they call out to those praying and feel restored and strengthened. This is a beautiful family that really do need prayer! Please pray that Oxsanah can be healed and lead a long healthy life! She is a beautiful little girl and these parents have fought so hard for her. Please remember this family in your prayers!

Thank you all,
Dawn